Collaborate with Us
We welcome the potential to use our resources to advance biomedical science in areas ranging from basic laboratory to clinical therapeutics to clinical epidemiology, and other aspects of patient-oriented clinical investigation. We invite interested researchers to consider collaborating with us. There are multiple ways to do that – perhaps you’re interested in becoming a clinical site for one of our multicenter observational studies. Alternately, you may want to propose a substudy in our cohorts, or perform analyses using the clinical, imaging, and biomarker data created through our studies.
To propose a substudy for our cohorts, please contact Dr. Boxer with a short (one-paragraph) summary of your proposal. If you are interested in joining ARTFL or 4RTNI as clinical sites, please contact Dr. Heuer to obtain a feasibility survey. We have limited financial resources for new sites, but are also excited to expand our networks.
Data from ARTFL, the related study LEFFTDS, and 4RTNI are available to researchers and we encourage their use. Data and resource sharing occurs jointly for the studies.
Please see the list of Available Data. Biospecimens are available through NCRAD. MRI Scans are available for a subset of ARTFL/LEFFTDS participants, and may be obtained through LONI. 4RTNI-2 also provides tau PET imaging and MRIs; these data are available by request through LONI.
The flow of data requests through ARTFL/LEFFTDS is shown here.
Please review the ARTFL/LEFFTDS Data Sharing and Publication policy, and refer to the ARTFL-LEFFTDS Data Guide and ARTFL-LEFFTDS Data Display Guidelines for more information. We provide global scores for the FTLD-CDR. These are calculated according to the rules shown in the FTLD-CDR Scoring Guide. We strongly recommend the use of the FTLD-CDR over the standard CDR for these data.
To request clinical data from ARTFL, LEFFTDS or 4RTNI-2, use the ARTFL-LEFFTDS Data Request Form. The ARTFL-LEFFTDS Data Management team will review all requests as quickly as possible. Please email ARTFL Management with any questions. For biospecimen requests, please complete the Biospecimen Request Form. Biospecimen requests will be reviewed on a bimonthly schedule.