The Registry is an online database created to connect the community of persons diagnosed, caregivers, family, and friends and help further research in Frontotemporal Degeneration (bvFTD, PPA, PSP, CBD, and FTD-ALS). Learn more at https://ftdregistry.org/.
Brain Support Network
The Brain Support Network (BSN) is a non-profit organization dedicated to the well-being of those challenged by neurodegenerative disorders. BSN's three main missions are focused on Brain Donation, Education, and Support Groups. Learn more at https://www.brainsupportnetwork.org/.
CurePSP is a non-profit organization working to improve awareness, education, care and cure for devastating prime of life neurodegenerative diseases. Learn more at https://www.psp.org/about-curepsp/.
AFTD's mission is to improve the quality of life of people affected by FTD and drive research to a cure. Learn more at https://www.theaftd.org/.
The Bluefield Project translates the findings from their research consortium into the development of drugs to treat FTD. Learn more at https://www.bluefieldproject.org/.
The Tau Consortium facilitates world-class research to treat and cure progressive supranuclear palsy by bringing together renowned scientists and collaborating with partners. Learn more at http://tauconsortium.org/.
CBD Solutions is determined to find a cure for the disease Corticobasal Degeneration (CBD) by providing the best tools and resources for scientists and medical professionals alike. Learn more at www.cbdsolutions.se.